In one day in 2015, I learned these three things: I was pregnant. There were no genetic answers for Tophs’s challenges. There was a genetic finding we weren’t looking for. I wrote about Tophs’s medical history here–about searching for causes of his growth failure, hypoglycemia, and developmental challenges. I didn’t write that in one phone […]Read more "In One Day"
I wrote about our medical journey with Tophs for Narratively this month. It was a difficult piece to write that I really wanted to get right. I’d love if you’d take a look.Read more "Our Journey with Tophs"
Your child is not an island. Except in those quiet moments when it feels so true that he is. When you have Googled and Facebook grouped and lurked on message boards and found not one soul like his. Maybe if you type his symptoms in differently, if you switch “hypoglycemia” with “blood sugar” or leave […]Read more "To the Mom Without a Diagnosis"
There are clues, you know. Certain phrases she uses. The way she listens to people without over-identifying. The way she makes mediation look like slicing through soft butter. I’ve come to terms with it: Paul and I are raising a mini school counselor. I mean, I’m totally cool with it. She’s like Paul in a […]Read more "You Might Be Raising a School Counselor"
Truly, I am sorry. I hope you were not in a meeting with your CEO or describing your bowels to the internist or standing still on one foot, clutching your prayer beads, as the scorpion backed away. I hope you were not, with great anticipation of all the feels, consummating your marriage or defending your […]Read more "I’m Sorry My Son FaceTimed You from a Bathroom Stall in Target"
ABSTRACT: Tophs’ successful surgery imbued him with special powers that must be harnessed. It also improved his quickstep. FULL TEXT: It begins with an innocuous shuffle in the grocery store. He unleashes the power of the Broken Eagle Wing dance by bending one arm so that the elbow points ahead like a compass. Where the […]Read more "Let Him Hold You"
My sister Sienna gave me a quarter-sized silver frog back in high school. I think it came attached to a birthday card. I don’t believe in good luck or its charms, but I kept that frog in the back pocket of my jeans every day until it got lost in the wash. I would take […]Read more "Never Alone"