In One Day

In one day in 2015, I learned these three things: I was pregnant. There were no genetic answers for Tophs’s challenges. There was a genetic finding we weren’t looking for. I wrote about Tophs’s medical history here–about searching for causes of his growth failure, hypoglycemia, and developmental challenges. I didn’t write that in one phone […]

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To the Mom Without a Diagnosis

Your child is not an island. Except in those quiet moments when it feels so true that he is. When you have Googled and Facebook grouped and lurked on message boards and found not one soul like his. Maybe if you type his symptoms in differently, if you switch “hypoglycemia” with “blood sugar” or leave […]

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Let Him Hold You

ABSTRACT: Tophs’ successful surgery imbued him with special powers that must be harnessed. It also improved his quickstep. FULL TEXT: It begins with an innocuous shuffle in the grocery store. He unleashes the power of the Broken Eagle Wing dance by bending one arm so that the elbow points ahead like a compass. Where the […]

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Never Alone

My sister Sienna gave me a quarter-sized silver frog back in high school. I think it came attached to a birthday card. I don’t believe in good luck or its charms, but I kept that frog in the back pocket of my jeans every day until it got lost in the wash. I would take […]

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