In one day in 2015, I learned these three things: I was pregnant. There were no genetic answers for Tophs’s challenges. There was a genetic finding we weren’t looking for. I wrote about Tophs’s medical history here–about searching for causes of his growth failure, hypoglycemia, and developmental challenges. I didn’t write that in one phone […]Read more "In One Day"
“We live and die by them shadows,” she said. She pointed as though the sun had melted into a pile of butter along her windowsill. As though I could dip my finger in it and drag the salt of disappointment across my lips. “I figure we born to live that way. We come out as […]Read more "Dark Swallows"
My two-month-old baby, Juliet, slept nine hours last night. Then these things happened: 1) I woke up, and racism was over. I didn’t even see color. Everyone was iridescent, and they just hated me for my character but said I was good at sports. 2) Not only that, but the people who would have been […]Read more "When Your Baby Sleeps Nine Hours"
I wrote about our medical journey with Tophs for Narratively this month. It was a difficult piece to write that I really wanted to get right. I’d love if you’d take a look.Read more "Our Journey with Tophs"
Your child is not an island. Except in those quiet moments when it feels so true that he is. When you have Googled and Facebook grouped and lurked on message boards and found not one soul like his. Maybe if you type his symptoms in differently, if you switch “hypoglycemia” with “blood sugar” or leave […]Read more "To the Mom Without a Diagnosis"
Sometimes life is funny. Like when Elie Mae tells me she can’t go to bed because her baby needs to potty. Me: What in thee world? Elie: The baby feels like she has to poop. Me: Elie, WHAT in thee world?! Elie (talks to her baby): I’m gonna be sad if you fall in. Sometimes […]Read more "The Words I’ve Needed"
We have borne the burden of proof. Buried it. Our bullet-ridden bodies not enough to poke holes in your privilege. Years ago, The Elders held picnics. Pack a lunch; kill a darky. Crunch a carrot between your teeth as his bones roast. His body s w i n g s… Then still. It’s Oprah’s Favorite […]Read more "To The Un-Indictable"