In One Day

In one day in 2015, I learned these three things: I was pregnant. There were no genetic answers for Tophs’s challenges. There was a genetic finding we weren’t looking for. I wrote about Tophs’s medical history here–about searching for causes of his growth failure, hypoglycemia, and developmental challenges. I didn’t write that in one phone […]

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Dark Swallows

As you know, I don’t normally write fiction. But I challenged myself to write a snippet for the Writer’s Eye Contest at UVA in 2015, and this is what came out: “We live and die by them shadows,” she said. She pointed as though the sun had melted into a pile of butter along her […]

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To the Mom Without a Diagnosis

Your child is not an island. Except in those quiet moments when it feels so true that he is. When you have Googled and Facebook grouped and lurked on message boards and found not one soul like his. Maybe if you type his symptoms in differently, if you switch “hypoglycemia” with “blood sugar” or leave […]

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